
I remember my very first shock with trigeminal neuralgia. It was a Saturday morning; I was taking a bath getting ready for church. As I was washing my face, for the first time in my life I felt an excruciating pain as I washed the left side of my face. Radiating along my jaw line. I didn’t think much of it and went about my day as usual. Then it happened again; unbearable pain at the touch of my toothbrush against my teeth. I thought, what the heck. Monday at work the pain of innumerable shocks affected my day. I called my dentist I was sure I was in the need of some serious dental work. After a thorough exam, my dentist handed me a piece of paper with the words that would forever change my life written in casual black ink: Trigeminal Neuralgia. He handed it to me and said go home and look it up on the Internet. I went back to work. One of my coworkers when I said the unspeakable that my dentist thought I had “trigeminal neuralgia” said; “ I feel really sorry for you, I used to volunteer at a TN workgroup and it is the worst pain imaginable, its called the suicide disease”. Really, I thought, you don’t know me and I don’t do chronic pain.
I kept my appointment with the myofacial pain specialist and with the neurologist who both agreed I had TN. I began the medications prescribed antibiotics, the muscle relaxers, anti depressants, anti anxiety; anti consultants for nerve pain. What followed was I could not function. I could not go to work as a nurse, I could not even get out of bed, and worst of all these medications did not stop the pain. The reality that this was not getting better happened to me when one day, I was laying on the couch when my daughter and her friend came over and my daughter said to me,
“Mom you’re drooling”. I was in severe pain; yet I could not feel the drool running out of my mouth. I was horrified, and went back to the neurologist (my third specialist). They tried giving me injections into my skull that at first I thought wasn’t too bad, but within the hour I could not even drive myself home.
When after failed success with the medications, injections, and advice to have surgery, a friend told me about a naturopathy doctor that they had success with. When leaving their house that night I asked my husband what he thought about the naturopaths, he thought it was ridiculous, but I said I wanted to give it a try.
My first visit with the naturopath was somewhat disappointing. She sent me back to my neurologist to be weaned off my prescription medications. My treatments with Jenny began three times a week, and then gradually lessened as my symptoms improved. I was able to return to work as an RN. I thought I had beaten this trial and had successfully put it behind me.
Then a few years later the pain returned. Again I sought treatment from a dentist. After having all my amalgam filling removed, four crowns and two root canals later, I had won again.
When I would have small flair ups I would treat myself with my EFS 100 that we had purchased, I took phosphatidyl serene supplements, used a cool laser, and vitamins. Then I found Therapeutic Grade Certified Pure Essential Oils. This had finally begun helping my TN pain. I was so happy, and still in denial that I had a real problem, even after eight years of suffering.
The winter of 2015 when we took a travel assignment in California I began having pain again. I used my supplements, used my cool laser, my EFS, and essential oils with no success. I was sure I had a problem with my teeth and after six weeks of suffering got myself a dentist appointment with a holistic dentist. After a thorough exam she said to me my teeth where fine and I needed to see my doctor about my TN. January 15, 2016, this was the day I finally accepted I had trigeminal neuralgia, this was a real chronic condition that I might not be able to fix. Would my husband love me through this unbearable pain, would my kids think less of me, would my coworkers think I was still a good nurse, would my friends, still like me; this was the day I accepted the imperfect me!
That may sound so cliché and easy but trust me it came with yelling, hatred, and lots and lots of tears and praying, God help me through this. You see imperfection is not something that comes easy to me. This reality was brought to my attention one year when my then great nephew at about the age of five was making Valentine cookies with his grandma, my sister. He said to her” this cookie is for Aunt Betty because its perfect and she likes everything perfect”. The wisdom of a child was an eye opener to me, I was, or still am a perfectionist.
The pain I was in was so excruciating. I compared it to grabbing big electric power lines. The pain would literally knock me to my feet. I couldn’t eat, I couldn’t sleep, couldn’t brush my teeth, wash my face, I could not go out socially with friends for fear they would see the pain, and chewing food was impossible. The worst part for me was I couldn’t even kiss my husband. I was put back on large doses of anti- convulsants, muscle relaxers, pain medications, and now also anti nausea medication because all the other medications where making me sick.
Again I went to neurologist, acupuncturist, chiropractor, massage therapists, and Chinese medicine doctor trying to get relief. I got some relief but still had limited pain free moments.
It was in September 2016 that I found Sharik Peck and I watched as he demonstrated the Tuner. I was very skeptical but desperate to try anything. I talked with Sharik, explained my story, and tried the Tuner. I wasn’t immediately sold. But remember I was on large doses of medications. A few weeks later I bought the Tuner. At first I could use it only on my feet & legs, any closer would induce the TN shocks. But the more I used the Tuner, the better I began to feel. I had spent thousands of dollars trying to find relief and found it in the affordable Tuner.
Then in July 2017 I was able to be off all my prescription medications and be totally pain free! After 19 months of suffering I was free! Free of medications, free of pain, free to be me. Free to be a wife, a mom, a nurse, a friend, and now also a grandma. Words cannot express the gratitude I feel for Sharik for inventing the Tuner, but for also answering all my emails and questions. He truly was interested in my condition and helping me to regain good health. Sharik is interested in helping restore health to everyone. Saying thank you will never be enough. But I am forever grateful!!!!!!
Betty F.
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